It is highly improbable that the wonderful new research, stem cell and genetic discoveries into Ataxia at this late stage will benefit me. But life goes on! I may be slowed down by the disability but my thoughts continue. All the issues that affect most people are issues that have consumed my thoughts as well. The solution project gives me the opportunity to address some of these issues.
The areas that are preoccupying me the most are things like human rights, climate change, R&D for medicine and rare diseases, gender and workplace equality, LGBTQE issues, disability awareness, vaccine development and environmental protection awareness. Sure it’s a heavy lift and especially if you are incapacitated with a neurological condition. But this shouldn’t deter someone from taking action. Realizing these issues of need, I have found partners to do the heavy lifting for me. Since hereditary Ataxia made having children genetically impossible on my own – the “ one tree planted “ organization has given me the opportunity to create a new kind of living legacy.
Having this new found energy made me aware that there is so much to do. Even if you are forced to sit in an armchair – The Solution Project gives me a reason to be a part of the solution in my own way. Having found event organizers makes me hopeful that I can contribute in some small way.