What is Ataxia?

Ataxia is a neurological disorder primarily of the brain’s cerebellum. Ataxia affects the balance, mobility, speech, bowl movement, fine motor coordination and swallowing. Two parents can posses a gene that is passed on to their offspring.

In the case of hereditary Ataxia the disease is passed on from generation to generation. There is no known cure for this disease. Research has made great progress in finding a cure , stem cell research and eliminating the gene that causes Ataxia , but more needs to be done.

Gene History for SCA
SCA6 Network

A great website for all types of Ataxia

Guidelines for Ataxia

ataxia.org (naf )

FARA (Friedrichs Ataxia Research Alliance )

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia.

View FARA’s website
Ataxia Information

One Tree Planted

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Findacure

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3 generations of hereditary Ataxia

Blog – Story

Singing opera

Biography

Tips for Daily Living with Ataxia

Daily Living Tips

The Caretaker

The Caretaker

The Solution Events

The Solution Events

A Cure?

A Cure?

Ataxia – a tale of survival and hope

A Member of the Solution Project

“The doctors stood around my bed as they gave their diagnosis of the neurological tests. They were all unanimous in their decision. They all said I would need to give up my singing contracts and start to retrain for a new profession. But what that should be, they didn’t say. This was a scary pivotal moment in my life. “

A Member of the Solution Project