Charity number – 1149646

Findacure is a UK charity focused on building a rare disease community with patient groups at its heart. We aim to transform the way that the world views rare diseases and believe that patients and patient groups have the power, knowledge and determination to drive this change themselves.

We work to upskill these groups so that they can have maximum impact, and connect them with the wider community, from other charities to industry, so that they can affect the change that patients need.

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Ataxia – a tale of survival and hope

A Member of the Solution Project

“The doctors stood around my bed as they gave their diagnosis of the neurological tests. They were all unanimous in their decision. They all said I would need to give up my singing contracts and start to retrain for a new profession. But what that should be, they didn’t say. This was a scary pivotal moment in my life. “

A Member of the Solution Project