What is Ataxia?

Ataxia is a neurological disorder primarily of the brain’s cerebellum. Ataxia affects the balance, mobility, speech, bowl movement, fine motor coordination and swallowing. Two parents can posses a gene that is passed on to their offspring.

In the case of hereditary Ataxia the disease is passed on from generation to generation. There is no known cure for this disease. Research has made great progress in finding a cure , stem cell research and eliminating the gene that causes Ataxia , but more needs to be done.

Gene History for SCA
SCA – Making an Informed Choice About Genetic Testing

Accelerate – NAF

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We are experiencing changes from our collective thinking about everything from climate change to electric cars and renewable energy – from going green in our daily lives to healthcare.

The advances scientific research and medical geneticists have made on the affects of people living with Ataxia and other rare diseases has truly been transformational. The SCA network and the CACN1A Foundation in collaboration with the Gomez Lab at Chicago university have found ways to enhance the lives of people living with Ataxia type 2 & 6 to replacing the gene responsible for Spino Cerebellar types, epilepsy, pediatric Brain movement disorders and possibly Alzheimer’s disease – and so much more.

We might not be able to cure the situations but a definite solution in the way we get tested for hereditary disorders and many treatments of the named diseases above have been developed. Research and medicine is so close to making the lives of so many change in a positive way.

SCA6 Network
SCA6 Network Home

A great website for all types of Ataxia

Guidelines for Ataxia
Virtual Annual Conference – Ataxia

ataxia.org (naf )

FARA (Friedrichs Ataxia Research Alliance )

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia.

View FARA’s website

2023 Annual Ataxia Conference scholarships applications now open:

NAF is awarding a limited number of travel grants for the in-person event and registration scholarships for the virtual event to low-income individuals with Ataxia.

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Ataxia Information

One Tree Planted

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3 generations of hereditary Ataxia

Blog – Story

Singing opera


Tips for Daily Living with Ataxia

Daily Living Tips

The Caretaker

The Caretaker

The Solution Events

The Solution Events

A Cure?

A Cure?

Ataxia – a tale of survival and hope

A Member of the Solution Project

“The doctors stood around my bed as they gave their diagnosis of the neurological tests. They were all unanimous in their decision. They all said I would need to give up my singing contracts and start to retrain for a new profession. But what that should be, they didn’t say. This was a scary pivotal moment in my life. “

A Member of the Solution Project