Ataxia is a neurological disorder primarily of the brain’s cerebellum. Ataxia affects the balance, mobility, speech, bowl movement, fine motor coordination and swallowing. Two parents can posses a gene that is passed on to their offspring.
In the case of hereditary Ataxia the disease is passed on from generation to generation. There is no known cure for this disease. Research has made great progress in finding a cure , stem cell research and eliminating the gene that causes Ataxia , but more needs to be done.
Accelerate – NAF
We are experiencing changes from our collective thinking about everything from climate change to electric cars and renewable energy – from going green in our daily lives to healthcare.
The advances scientific research and medical geneticists have made on the affects of people living with Ataxia and other rare diseases has truly been transformational. The SCA network and the CACN1A Foundation in collaboration with the Gomez Lab at Chicago university have found ways to enhance the lives of people living with Ataxia type 2 & 6 to replacing the gene responsible for Spino Cerebellar types, epilepsy, pediatric Brain movement disorders and possibly Alzheimer’s disease – and so much more.
We might not be able to cure the situations but a definite solution in the way we get tested for hereditary disorders and many treatments of the named diseases above have been developed. Research and medicine is so close to making the lives of so many change in a positive way.
A great website for all types of Ataxia
FARA (Friedrichs Ataxia Research Alliance )
The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia.
2023 Annual Ataxia Conference scholarships applications now open:
NAF is awarding a limited number of travel grants for the in-person event and registration scholarships for the virtual event to low-income individuals with Ataxia.